You can’t feel lipedema through a screen, so I built a version you can. Here’s how to make your own DIY nodule model at home.
What Does Lipedema Actually Feel Like? Try This DIY Craft Read More »
Sixteen weeks post upper arm removal, I’m skipping the usual update on my own recovery to hand you something more useful: sixteen peer reviewed studies that validate what lipedema women have known about our bodies for years, from a landmark global consensus paper to new research linking lipedema fat to lipomas at the cellular level.
16 Weeks, 16 Studies Read More »
Ready to turn your personal Lipedema struggle into a structural solution? The Lipedemama Statehouse Advocacy Toolkit gives you the exact, data-backed blueprint used to successfully secure legislative commitments for women’s health equity. Download customizable templates, access the latest 2026 global scientific consensus data, and get plug-and-play steps to turn your local representatives into Lipedema champions.
How to Use the Statehouse Advocacy Toolkit Read More »
After lipedema upper arm removal surgery with 3.5 liters removed, I documented every single supply that got me through recovery, organized by category so you can shop with intention. From compression to hygiene hacks to the one pillow I am still using at seven weeks post-op, this is the real list nobody gave me.
My Lipedema Upper Arm Removal Supply Guide Read More »
Access downloadable resources for tracking and assessing Lipedema mobility. This post includes a blank Lipedema Physical Evaluation form, the Upper Extremity Functional Index (UEFI), and the Lower Extremity Functional Scale (LEFS).
Functional Mobility Exam Read More »
In Wisconsin, grassroots advocacy is underway to make sure lipedema is finally recognized, covered, and treated. A bill requiring insurance coverage is moving through the New Jersey legislature right now. The U.S. Department of Veterans Affairs already recognizes and treats lipedema. The door is open, and we are pushing through it.
Wisconsin women with lipedema: we’re fighting for you 🩷 Read More »
I found out about lipedema in a comment section, and within minutes, I realized I was reading my own life story. For years, I blamed myself for a body that wouldn’t respond to diets or marathons, only to discover there was a medical reason all along. If you’ve ever felt like your body was a mystery or a ‘failure’ despite your best efforts, this guide is for you. From identifying symptoms in the arms and legs to navigating doctor appointments with confidence, here is what I wish someone had told me at the start of my lipedema journey.
I think I have lipedema. Now what? Read More »